By Kim Leonetti, on July 10th, 2009
NICHOLAS CARTER LEONETTI was born on October 7, 1986 at 37 weeks by C-section. He weighed in at 8lb.13oz. and his apgar scores were 8 and 9.
At 2 months Nicholas needed hernia surgery and at 3 months he developed a pericardial effusion. It was tapped but reaccumulated immediately and at 4 months he had a pericardial window.
Nicholas was floppy and physically behind but the doctors said it was because of having 3 surgeries in his first 4 months. But by 7 months we knew things weren’t right and they were now calling him “failure-to-thrive”. At this time we began an infant stimulation class (two times a week till he was 3 years). « Continue reading »
By Tiffaney, on June 26th, 2009
The hardest thing I’ve been through as a parent is to have to bury two of my children… It taught me to cherish life and love every moment that I have with my family. It taught me not to take my kids for granted because they could be taken from me with no warning. Every day is a blessing, treat it as such!
By Jeff, on April 21st, 2009
I felt like we had become spiders living in a web of wires and tubes. They clung to her feet and chest. They protruded from her nose, back, arms, and other uncomfortable places. It was difficult to move her or to even change her diaper. It was nearly impossible to pick her up. She was in a constant state of discomfort and pain where sleep comes in small spurts and only when weariness finally overcomes pain. « Continue reading »
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By Jeff, on March 29th, 2009
Parenting Lessons From a Suffering Child: Introduction.
This blog series includes parenting lessons my wife and I received from our 2-year-old daughter who suffered serious medical issues resulting in more than a years worth of surgeries and other traumas. The road we trod together was painful and life shattering but in the end, we were all changed for good! « Continue reading »
